An 11-year-old girl has been left unable to walk, speak or eat – and doctors have no idea what is wrong with her.
Kaci Smith’s mother has spoken of her agony after her ‘happy and healthy’ daughter suddenly came down with the mysterious condition in February.
Three days after waking up with slurred speech, Kaci was mute and bed bound, and her family are still searching for answers seven months later.
Her mum Emily Smith, of Morganstown, Cardiff, said her daughter has lost ‘everything’.
Emily, 30, said: ‘Kaci started slurring really badly and within three days she could not say a word. She has not spoken for months.
‘Since February she has lost everything. She can’t read, she can’t write, she can’t walk or go to the toilet. She is back in pads. She literally can’t do anything on her own.
‘Watching her melt away and missing life, I’m not sure how much more we can take.’
Emily quit her job to be Kaci’s full-time carer, and her daughter relies on her for everything.
The family is hoping for an appointment at Great Ormond Street Hospital, but have been told the waiting list is six months and fear she could deteriorate in the meantime.
Emily added: ‘Her brother Jaxon is scared it could happen to him. I can’t tell him the truth because I don’t know what it is.
‘Even if it was something sinister I would rather know.’
Kaci was due to start at Radyr Comprehensive Secondary School on Tuesday, but remains ill at home.
Her family hope they can raise enough money for private treatment, but have been told it will cost up to £250,000.
To donate to their online fundraising page, click here.